Is the charity registered with the Charities
Yes. Joining Jack was registered with the Charities Commission
on the 17th July 2012. The Registered Charity Number 1148156
Why has the Charity been established?
Andrew and Alex Johnson's son Jack, was diagnosed with Duchenne
Muscular Dystrophy (DMD) in November 2012. Since Jack's diagnosis,
we are not ashamed to say that we have cried every day and have
spent endless hours scouring the internet to find answers.
Currently there is very little awareness of DMD and research into
finding possible treatments is drastically underfunded. However,
over the past few years, with help from charities around the world,
human clinical trials have begun to take place with encouraging
results. It's for this reason that we have set up our own charity
Joining Jack, to help move things forward for Jack and other
children like him.
What is Duchenne Muscular Dystrophy (DMD)?
Please take a look at the about DMD section of the website. /menu/about-dmd.aspx
Does the charity have a mission statement?
The charity JoiningJack has the ultimate aim of finding a cure
for Duchenne Muscular Dystrophy. If a cure can be found
or treatment discovered to increase life expectancy it will not
only help Jack but boys throughout the world suffering from
Duchenne Muscular Dystrophy.
What are the charities objectives?
The objects of the charity are:
To relieve the needs of sufferers of Duchenne Muscular Dystrophy
(DMD) by funding research into methods of treatment and cure of the
Is the charity linked to any other
We are a member of the Duchenne Alliance (which is an
alliance of independent Duchenne organizations dedicated to
advancing our missions to improve quality of life, care, and
treatment of those affected by Duchenne). Over the coming months
and years the charity aims to choose carefully charities that they
wish to align themselves with to help achieve the objectives set
out in the Deed Of Trust submitted to the Charities Commission.
How is the money raised going to be
The charity has appointed a board of Trustees. The trustees are
responsible in providing a strategic overview of direction for the
charity and ensure appropriate safeguards are in place for
legitimate distribution of amassed funds. The trustees of the
Chair- Andrew Johnson
Vice Chair- Matthew Johnson
Treasurer- Lynn Hassan
General Trustee- Daniel Barker
The trustees have also appointed an independent scientific
advisory board. To help assess applications received from the
pharmaceuticals sector, this medical board are asked to review
these applications and report their findings back to the Board Of
Trustees. The final decision on whether the charity will accept an
application and therefore release the required funds will be taken
by the Board Of Trustees once they have considered the findings
from the Medical Board.
Joining Jack is also a member of the Duchenne Alliance,
which allocates funds to research projects. Joining Jack are
particularly keen to focus on transitional research. Research that
takes potential therapeutics approaches out of the laboratories and
into clinical trials.
Does the Charity employ anyone?
To help deliver the strategic goals of the charity the trustees
have created a working group that consists of approximately 16
people. This working group has the responsibility to help organise
and deliver the charities flagship events. All trustees and
individuals on the working group committee are volunteers and are
not paid so given the time free to the charity. This means that
every penny of every pound raised goes to help fund research to
help find a cure for Duchenne Muscular Dytrophy.
Does the Charity have a financial target in
No. To change the progressive nature of DMD it is believed that
a range of drugs will have to be developed to treat the various
problems that arise from having the condition. We want to help put
funds into as many of these projects as possible.
How do I get involved with the Charity?
For ideas on fundraising for the charity take a look at the
section Fundraise for Joining Jack.
To become a Corporate Partner or all other enquires