DMD Hub Impact Report 2020
We are pleased to share with you the DMD Hub Impact Report 2020.
The DMD Hub, funded by Joining Jack Duchenne UK, is a network of hospitals delivering clinical trials and facilitating access to treatments for the DMD community in the UK.
2020 has been an unbelievably challenging year. Yet in spite of COVID-19, the DMD HUB, one of Joining Jack and Duchenne UK’s flagship collaborative programmes has been building on its success.
The DMD Hub has transformed the clinical trial landscape for DMD in the UK – providing a one stop shop for clinical trial support, and enabling more trials in the UK than ever before.
We’d like to take this moment to thank the incredible staff working in the NHS – every year, but in particular this year, and we hope you enjoy reading about how we are working with the NHS to help us deliver more ground breaking research to the UK.
Please do take a moment to see just how hard we’ve been working. You can view and download the report here.
To find out more, please visit DMDHUB.ORG
Flagship Events
Parents Diaries
- Parent Diaries List...
- Early Access to Medicine Scheme
- Why Medical Innovation is Key
- Duchenne Policy Forum in Washington DC
- L'Etape Part 1
- Nearly a year on
- Dubai friday brunch
- We have lift off
- The start of the journey
- Frustration is building
- Guest Blog by Ruth Le Gal
- A Call to Action
- My email to Federal Drug Administration
- Solid Science Summit
- Five years on
- ‘Do you have proof your son is disabled?’
- Update from Jet 2
- Protecting myself - COVID-19
- Being the parent of a child on a Clinical Trial