It is with an immense amount of pride and gratitude that we are publishing this, our first Policy Report.

It will give you a complete picture of what it is like to live with DMD in the United Kingdom in 2024.

It reports on the gaps in treatment, care and support, and sets out our vision and our roadmap for change.

In it, we take stock of the progress that has been made in the 13 years since we set up Duchenne UK