Patient Advocacy

One of the biggest and most important roles of our founder Alex Johnson, is providing support and advice to parents and families in the Duchenne Community.

If your child or a family member is living with Duchenne muscular dystrophy, alongside our charity partners Duchenne UK, we are here to support you at any point on your journey, from diagnosis into adulthood. We provide information and resources and opportunities to connect with other families.

Read more about Family Support: https://www.duchenneuk.org/get-support/