We're Joining Jack in the fight to find a treatment for Duchenne
Joining Jack was officially launched with the Charity Commission in July 2012 by Alex and Andy Johnson, parents of Jack – less than nine months after their world fell apart when their son, three months short of his 4th birthday, was diagnosed with Duchenne Muscular Dystrophy, an incurable muscle-wasting condition for which there is currently no cure.
For more than a decade, Joining Jack has been campaigning, fundraising, lobbying and investing in research, clinical trials and positions and improved standards of care to bring the best possible treatments with the best possible outcomes for ALL boys living with Duchenne.
This is the story so far …
About Jack
In October 2011 we received the shattering news that Jack has Duchenne Muscular Dystrophy.
About Duchenne
DUCHENNE Muscular Dystrophy is one of the most common fatal genetic disorders to affect children around the world.
Duchenne UK
In 2016, Joining Jack joined forces with another powerful charity adversary and friend, Duchenne UK, previously Duchenne Children’s Trust.