In October 2011 we received the shattering news that Jack has Duchenne Muscular Dystrophy (DMD). Failing a medical breakthrough, Jack's life will follow a predetermined path, mapped out by this progressive muscle-wasting condition. In short, he will no longer be able to walk by the time he reaches adolescence and will lose the use of every single muscle in his body thereafter. He may need spinal rods to keep him upright and ventilation to help him breathe. Eventually his heart and lungs will fail and he will die.
There are no words to describe the utter devastation felt upon hearing that your child's life will be cut short because there is no cure. We have had the greatest pleasure watching Jack develop into the amazing boy he is today but now, unbelievably, we must prepare ourselves for his steady decline. And the worst part? Seeing him struggle as his body wastes away, and being absolutely powerless to help.
Currently there is very little awareness of DMD and research into finding possible treatments is drastically underfunded. However, over the past few years, with our help human clinical trials have begun to take place with encouraging results. It's for this reason that we set up our own charity, to help move things forward for Jack and other people like him.
We have always wanted a quiet family life and have never felt comfortable asking for anything, but now is not the time to be proud. We cannot sit back and watch Jack being ravaged by this condition if there is any chance that we can make his future a more positive one. From the bottom of our hearts we are asking if you can help join our fight to find a treatment for DMD. You can contribute by making a donation, organising an event or simply following us Facebook, Twitter and Instagram, and spreading the word about our cause. Time is precious to us now and for ANY support you can give, we will be eternally grateful.
To know that we are facing a future without our beautiful son is impossible to believe. At least with your help we will be able to tell him that we gave everything we had to this fight of all fights.