Joining Jack News
Jack Johnson, Wigan Warriors, Media Assistant, Work Experience
When he's not too busy planning three-course meals with the @englandrugbyleague official squad, Jack has been blogging for Team JJ about his Work Experience with our lovely friends at @wiganwarriorsrl. Check out Week One
Jack ‘007’ Johnson goes to prom in a DB12
Jack arrived at his leavers’ prom at St Peter's Catholic High School in a very special set of wheels. Thanks to Aston Martin Birmingham, he and dad, Andy, picked up a very special set of wheels on Friday afternoon - an Aston Martin DB12!
Duchenne Siblings research survey and focus group
Newcastle University would like to invite you to take part in and online survey and/or a focus group to help them find out more about the needs of siblings of individuals with Duchenne.
Jack and Team JJ were invited by Wigan Council to the All Stars Celebration marking 50 years of Wigan Borough.
St Peter's Catholic High School lift the National Schools Rugby trophy
A massive well done to James (Jack’s little brother) and the St Peter's Catholic High School Year 7
HW Moon Toyota Run Wigan Festival ‘23 raises £30,000
Our biggest event since 2018, doubled last year's total raising an awesome £30,000!
Our co-founder Alex is presented with OBE by the Princess Royal
We are so incredibly proud of our co-founder Alex Johnson, who has received her OBE from Princess Anne the Princess Royal.
200 guests welcomed to New Horizons conference
We were delighted to welcome over 200 guests to New Horizons over the weekend. It was brilliant to see the Duchenne community come together and support each other.
£1 million to fund the next three years of DMD Care
To mark Rare Disease Day 2024 Alex and the Joining Jack team took part in a series of collaborative meetings: the first to address the work we are doing in harnessing technology to help disability and the second was to continue to drive forward our amazing DMD Care UK programme, to ensure boys get the best care, no matter where they live.
First treatment for all patients with DMD approved in UK
We are delighted to welcome the news that the Medicines and Healthcare products Regulatory Agency (MHRA) has approved vamorolone (sold under the brand name Agamree) for the treatment of Duchenne muscular dystrophy (DMD) in patients aged four years and older.
New, decentralised study to validate new, home-based video assessment of DMD
Decentralised study to validate new, home-based video assessment of Duchenne
Santhera has applied for marketing authorisation to the European Medical Agency for the drug vamorolone.
We partnered with Whizz-Kidz and the University of Edinburgh to win £1 million from the People’s Postcode Lottery Dream Fund to develop a dream chair for wheelchair users